Sunday, April 1, 2012

A for Alzheimers

What is Alzheimers ? Alzheimer's is a type of dementia that causes problems with memory, thinking and behavior. Symptoms usually develop slowly and get worse over time, becoming severe enough to interfere with daily tasks. That's the basic definition of Alzheimers.  I call it the Great and Terrible Thief.  My Dad has Alzheimers, he was diagnosed 4 years ago and has been living (along with my Mom) with my husband and I for 3 years now so we can help Mom with Dad's care.  He can't be left alone for any period of time.  He's to that point where he obviously is not allowed to drive a car and his memory has completely disintegrated with the exception of long term memories from his twenties and earlier.  Dad has a younger brother and older sister that have already passed.  To give you an idea of how a day with Dad goes... out of nowhere the other day he says to my Mom, " we haven't seen Joan in awhile have we?", Mom says, "No honey we haven't," before she gets to say anything else Daddy looks at her with tears running down his face and says, " she's dead isn't she?", Mom explains to Dad that yes indeed his sister has passed away about 5 years ago and yes they did go to her funeral.  Dads lost his sister all over again and sits quietly mourning his sister again.  The same scenario has happened several times with his brother as well.  He makes mom promise they'll go visit the grave the next week, the next week comes and Dad had long forgotten his desire to visit the grave and the fact that two of his siblings are gone.   Daddy can no longer dress himself as far as picking out his own clothes.  He'll pick out Tuxedo pants for church and gets VERY frustrated and flustered when we tell him those aren't to be worn for church, how about he try this suit.  He doesn't understand, and then he feels he's being picked on.  He complains a lot about how he can't do anything right, but that's soon replaced with the total lack of memory that it even happened at all.  The only blessing in this horrid life stealing disease is that for him, it takes all his memory, the memory of what was his life but more importantly the memory that he has this disease and is so sick.  He hasn't become belligerent yet or hard to deal with, I think that's because he still knows who the people in this house are.  He isn't so clear on some other people.  You know, I saw on Dr Oz a brain of an Alzheimers patient.  The disease literally eats away the brain, there was barely anything left compared to a healthy brain without the disease.  So as the disease progresses it literally is taking away your essence in your brain.  They say when you've met one Alzheimers patient you've met one Alzheimers patient because it's so different for each person.  No two patients will have the same experience.  What I do know is it's hereditary and I work hard to keep my brain engaged so that I'm exercising my brain and trying to keep it as healthy as I can.  That actually can he helpful to stave off the Alzheimers in the early stages.  I debate over being tested to see if I have indeed inherited the gene.  But as long as I have Dad and Mom to take care of I think that's enough information for me to take in right now.  Maybe someday I'll get checked.  I am well aware of the 10 danger signs of the disease and keep up on what's going on in the medical world for Alzheimers.   I have a link on my blog for Alzheimers that you can go to and check out information on the disease.  All I know is the man I care for right now, has my Daddy's body and voice, and sometimes I see a glimmer of my daddy...but the Dad I knew, he's quickly leaving us and there's nothing I can do about it.. nothing anyone can do about it.  I watch that movie "The Notebook" and wish desperately Dad, had had a Notebook... This is a disease that is actually harder on the caretakers than the patient, since the patient doesn't know.... that they don't know..it's the challenge that's been given to us to overcome and that's what we'll do and we'll make Daddy as comfortable and feel as safe as humanly possible as long as the disease will let us.  Then there will come a time that we will no longer be able to make that difference.  But I don't live dreading that day or dwelling on Alzheimers... I spend my days dwelling on the fact that for now.... I have my Dad to love and be with.  I'm building my memories of the tender love my Dad shows and of a time that I could do for him... to show my respect for the man who raised me and loved me all of my life, Alzheimers...won't take that away from me as well.  If I ever wonder what my purpose in life is... all I have to do is look at my parents... and I know what I am meant to do.. and I thank God he's given me the ability to care for my parents and pray he will continue to bless me in this ability.  Here's my handsome Dad and Mom about 5 years before Dad was diagnosed with Alzheimers.. A better time in life ....They've been married 56 years, I love this photo ... there's so much life in Daddy's eyes.. where now that glint has faded.. Alzheimers, the Great and Terrible Thief!!!!

30 comments:

  1. Hello Carri,

    I am also participating in the A to Z Blogging Challenge. I was very touched by your post.

    My grandfather died with Alzheimer's. It was really hard on my grandmother. After it had seriously progressed, he would literally rip the doors off the hinges to escape the house. It was an ordeal to get the help for herself and the care for him that was needed. At the same time, out of love for him she tried to hide his illness as long as she could.

    I am sorry you and your father are having to go through this right now. I wish you the best in caring for your dad and dealing with this.

    Have a great week!

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  2. Thank you so much Wendy for your comment.. It's funny something you said about your Grandmother trying to hide the illness as long as she could out of her love for your Grandfather, my Mom does that too.. She tries to "cover" for him all the time and we keep telling her that's not helping ... it's not the kind of love he needs. Thanks again for your comments it really helps to hear from others who've been through it...

    xoxo,
    Carri

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  3. What a wonderful start! Wouldn't have thought about that! Great post! Thanks for shareing!

    Stephanie

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  4. Thank you Stephanie.. =)



    xoxo,
    Carri

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  5. I am sorry about your dad!
    What a sick and cruel disease.

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  6. Thank you for your kind words...



    xoxo,
    Carri

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  7. You are bringing heart felt attention to this cruel disease...sorry about your dad.

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  8. Thank you so much for your warm words and thoughts...


    xoxo,
    Carri

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  9. It is true. I used to work in a group home taking care of people with Alzheimer's and no two patients were affected the same way. There was a sweet lady there who no longer had the ability to walk forward but she could walk backwards better than Micheal Jackson on a Moonwalk. I'm sure your Dad would be proud of you if he could totally grasp just how much you do for him and your mother. You are a good daughter because he raised a good daughter.

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  10. Thanks Gayle... that means a lot...more than you know



    xoxo,
    Carri

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  11. I've walked this road & it is so hard. My dad lived for 13 years with Alzheimers...diagnosed at 59. We lost him little by little; and, when his death came, we were thankful he was no longer suffering. My mom (a nurse) attended to him at home. We are thrilled she has remarried and is enjoying herself now. You are living out what FAMILY means. Bless you all!

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    1. Thank you... I'm sorry you had such a hard time, I'm glad life has treated you well since. I believe God blesses people for the good things in life they do....and I agree that this is what FAMILY does for family..
      Thanks for stopping by I hope you stop by again soon =)

      xoxo,
      Carri

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  12. my grandaddy had it too---I can empathize with the light going out of their eyes. It's such a humbling disease...
    blessings as you navigate!
    http://bit.ly/HdUHmd

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  13. Thank you for your kind words.. I'm so glad you came to visit ...please visit again soon..


    xoxo,
    Carri

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  14. Wow, what a touching post. Alzheimer's really is a thief--but you're not allowing it to steal all the joy from your life, so what a shining example you are! I pray that you will continue to have strength to make your home a haven of grace for your parents. God bless you!

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  15. Thanks so much Richella for your kind words..
    God Bless you and yours....


    xoxo,
    Carri

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  16. Oh honey, this disease IS a big thief, I agree. My FIL had it, lived 5 years after the diagnosos but we now realize he was showing symptoms LONG before that. He was 96 when he passed last year. He had a WONDERFUL, full life as a pilot; flying all over the world and loving it and his family. We miss him alot. You are doing the best thing you can. I took care of my Mom for 5 years too. Take good care of yourself too. XO, Pinky

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  17. Thanks so much for your kind words..As you know in family you do what you have to do to take care of family.. I'm so glad you stopped by and hope you come again soon... I love company.



    XOXO,
    Carri

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  18. You, your husband and mother are amazing people! I'm sure that it can be difficult to go through this with a loved one. You all are doing a wonderful job caring for him. Megan

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    1. Megan,
      Thank you so much for your kind words.. It is difficult but like you say it's family and that's what you do for family.. and you do it with love... Thanks again so much...


      xoxo,
      Carri

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  19. My mom died of alzheimers last summer. She lived about 12 years after her diagnosis, moving from assisted living to an alzheimers home. She remained her sweet self but had no idea who we all were and had to be told to do simple things like brushing her teeth. Such a sad disease.

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    1. Angela,
      I am so sorry for your loss.. so far we are able to care for Dad, he doesn't always remain so sweet, but so far we're managing... It is indeed a very sad disease...Thanks so much for your comments and your visit. Please stop by again soon, we love company around here.


      xoxo,
      Carri

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  20. hello! beautiful blog! I related immediately b/c I help my folks (89 and 92) who have levels of dementia. They live close by in an ALF, but I help them daily. I have grieved off and on this past year as they decline. I'm going to follow you see how things are going for you. How wonderful that you can have your dad live with you. I'm popping in from the A-Z thing. It's been great to discover many believers in the blogging world. So nice to find you! (Come visit my Ballpark - just click my name.) :-)

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  21. Thank you so much Mare for your sweet kind comments... I know what you are going through all too well. I will return the follow... see you soon. Come back soon I love company.


    xoxo,
    Carri

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  22. Carri, I have not been touched by the disease as of yet. Thank you for a glimpse of what it is like. Awesome that you are able and willing to care for your parents! http://www.laughwithusblog.com/

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  23. Thank you Esther for your kind words.
    Thank you so very much for stopping by, come back soon, I love company =)

    xoxo,
    Carri

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  24. I was just hopping over from the May Day Blog Hop and saw this piece. I too, have raised my kids and now I am guardian over my Mother with Alzheimer's. Her's has progressed a little bit more than your Dad's but you did an amazing job of describing the situation in this post. I try to explain but I don't believe anyone really realizes the extent this disease has not only on the patient but the family members. You are right it is harder on me than my mother. I came over to invite you to participate in my first ever blog hop and I would like to invite you to read my posts on my mother. All prayers to you and your family. God knows how tough it is and HE is listening.

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  25. Evelyn,
    My heart and well wishes are with you during your time of caring for your Mother.. I know what you are going through and how difficult it is. I pray God will give you the strength you will need to see this through. If you ever need someone to talk to get ahold of me.. I'd be glad to listen...

    xoxo,
    Carri
    simplydonewright@gmail.com

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    1. Thank your so very much. I was talking to my hubby about your remark " They say when you've met one Alzheimers patient you've met one Alzheimers patient because it's so different for each person" and we both totally understood. And He added but when you meet a one caregiver for an Alzheimers patient you have almost meet them all. I don't need to explain that one. Thank you for your prayers and for listening.

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  26. Evelyn,
    What you say is so true.. I know so many of us that give tirelessly for those we love. It's not always easy but always worth it..


    XOXO,
    Carri

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THANKS SO MUCH FOR YOUR FEEDBACK... I APPRECIATE YOUR TIME... AND COMMENTS :)